Thursday, 29 December 2011

The knee bone's connected to the thigh bone.

Image courtesy of https://fbcdn-sphotos-a.akamaihd.net
I've had the date through for my bone density scan in January.

Since my last scan around 2 years ago I've been doing as much as possible to get my bones in good working order again. This has included upping my intake of dairy and iron rich foods, taking a calcium & vitamin D supplement daily and making sure I get lots of sunshine (which has been a little difficult to say the least since I live in the gloom of England!). I'm rubbish at exercising but I've even started going to some regular classes (minus a few weeks off over Christmas for some festive slobbage).

I'm hoping so badly that my bones will be stronger this time so that my options can be opened up once again.


Has anyone got any other tips on how to get my bones super strong?

S.

Sunday, 25 December 2011

O come all ye faithful.

Image courtesy of Instagram
I just want to take this moment to wish all of you a very merry Christmas. May the New Year bring you love and happiness and hope.

S.

Thursday, 22 December 2011

Hormones galore.


I'm all set to start my next course of treatment now: the pill - while I still have my Mirena coil in place.

I have been given 3 packs of 21 tablets (as usually you would take a 7 day pill-free break at the end of each pack, but I've been advised to take them continually) and I just take one per day. If it works I'll have to go back and get some more to cover me up until I next see the Prof. in April.

Has anyone else ever tried this treatment before? I've tried various contraceptive pills now (none of which worked before) but maybe taken at the same time as having my coil in place might work. Hey, it might even stop my periods if I'm lucky.


I'm trying to be positive although I do feel almost like the Prof. has exhausted his options and is just grasping at straws now in the vain hope that something may someday work on me.

Here's to the next 3 months...

S.

Tuesday, 6 December 2011

The people vs. Holly Hill.

Image courtesy of http://google.com
I've only just read about this, and I had to post immediately because I am so absolutely disgusted that in this day and age, there are still people women out there who are like this: disrespectful, unsupportive and in general, just total bitches.

Now, you know all about my ongoing battle with Endometriosis. My daily struggles with not only the pain of the disease but also the effects it has on my emotions. And I'm certain that the words I write here are also the struggles that every one of you reading this go through in some way or another.

But tonight I read a story that absolutely shocked me. And what was it for? Little more than PR. Well, well done Holly. Picking on something that you obviously know very little about.

Holly Hill is an Australian author, whose works include "Sugarbabe" and "Toyboy". She was interviewed on an Australian radio station, Nova 96.9, last Wednesday 30/11 and stated:

"Why should being with someone for the rest of your life be about crossing your legs and controlling urges? There's times in people's lives when they don't want to go into the bedroom, like if a lady has a baby or if she has endometriosis or if a man has a particularly stressful job, so if your partner is not 'in the mood' why on earth shouldn't the other person be able to still engage in those types of behaviours?"

Now, I'm all for people having their own opinions, and in some ways I can clearly understand Holly's point. It's something that runs through my head all the time. In fact, only a few nights ago, I broke down in front of the boy and told him he should be with someone else. I can't give him the future he deserves so why should I keep him here. But he's not chained to me. He is his own person. And he loves me, Endometriosis or not.

So why, as one of the countless women across the globe battling this disease, should I be discriminated against because sometimes I'm "not in the mood". It's not even a case of not being in the mood. It's a simple fact that I'm simply in too much pain to do anything. If I could, I would do it all the time. I love sex. There - it's out there for the whole world to read. I LOVE IT. But sometimes, it's just not possible.

Even writing this, the more angry I'm getting, the more I'm justifying in my head what Holly has said. There is nothing more I wish for than for my incredible boyfriend to be happy and if that involved another woman than so be it. But I certainly do not approve of women who know nothing about the disease we have to deal with, someone who has regularly been the mistress, to turn around and tell me that I deserve for my boyfriend to cheat on me. And I think that's the point... She implied that we (a collective of all sufferers) deserved it.

As insulted that I am by these insensitive comments, I was also disgusted by the retaliation of some people. Holly's Facebook page show's photographs of her and people are openly saying she deserves to have acid thrown at her amongst other insults. Ladies, I'm furious, but I'm also looking at this with a sensible head - no one deserves acid being thrown at them. And though Holly has made an uneducated mistake, I'm sure she has now learnt from this. Although I do believe it's a little too late for apologies.

Maybe a little thought would go a long way next time around.

https://www.facebook.com/#!/hollyhillauthor

http://www.bedriddenhead.com/2011/12/holly-hill-endometriosis-and-stupidity.html

S.

Sunday, 4 December 2011

Back. Back to where it all began.

Image courtesy of http://www.mandylogy.com/1254-am/
I saw the Prof. on Monday. I wanted so badly for him to say they had found a new amazing treatment that would cure my Endometriosis. Or at least something that would actually work. Unfortunately, my visit didn't really conclude in the way I had hoped.

I went in and explained to him all of the problems I was having with the Mirena coil: How it was making me feel sick. How I had lost my libido. How bad my acne was again. How my moods were like a roller coaster. How bad my pain was. The response I got: "You're a complicated case".

He explained there weren't many options left. I can't have surgery because the scar tissue just makes my pain worse. I've tried the pill and the coil. I've tried hormones. I've even tried for experimental treatments but since my bones are so weak I can't have that.


He now wants me to go back on to the contraceptive pill while I still have my coil in and see how that goes for the next 4 months. I asked him for another bone density scan since my last one was 2 years ago and he has agreed to that. I've been taking calcium supplements and have improved my diet since I found out about my Osteopenia so I'm hoping this will have improved my bone density so I can try some new treatments. I'm hoping anyway.


But the worst thing he said is that in 4 months time, I'll be back on add-back therapy. My worst fear.


What hope is there if even my "specialist" hasn't a clue what to do with me.

I've tried all these things before and look where they've got me. Back here. Back to the beginning.


I feel like giving up.

S.
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