Friday, 27 May 2016
You might have seen on my Instagram already, but we went away last weekend to stay with Danny's parents while they were on holiday in Skegness. It was really nice to get away again and the weather actually stayed dry for us - which was nice after our very rainy holiday in Dorset! We visited a few local attractions and fed the ducks and geese who would congregate throughout the day outside the patio doors of where we stayed and Hunter loved spending some more time with his nanny and grandad!
Unfortunately, my endo decided to play up big time and I was in terrible pain with it. I haven't really had pains like this for a long time so I wasn't prepared for it at all and I had almost forgotten how poorly it makes me feel.
I've kind of been in limbo for the past few years with it because of not having periods while I was pregnant and then them being so sporadic post-birth. I didn't know what would happen with my endo and I had always secretly hoped it would be like all the doctors say: you know, one of those magical stories you hear where women with endometriosis are miraculously cured because of the pregnancy. I know, I know, it was a long shot, but a girl can dream can't she!?
After having Hunter, I started on a progesterone-only contraceptive pill (POP) called Cerazette. I don't know if it's the same with every woman post-birth, but the doctors and midwives kind of jumped on me and wouldn't leave me alone until I agreed to it in case I got pregnant again - no matter how many times I told them I wasn't able to have children naturally and had been through IVF! But then, on the flip side, I was really frightened of getting pregnant again - it was such an odd feeling after wanting a baby for so long. But, anyway, after much deliberation, I started on the pill and had to have a POP because I was breastfeeding. This is the first POP I've ever been on and you take it everyday without a 7 day break in between packs. I remember the doctor saying that I most likely wouldn't have any bleeding at all, not only because of the pill but also because of the breastfeeding. But, as I mentioned before, my periods returned when Hunter was around 4 months old. They were always very light and at first were more like the odd bit of spotting here and there, however they soon increased in duration and flow. They were also completely irregular from the outset - though I expected this since that's how they had always been. November came around and I started a period as usual, but this time, it didn't stop. It's been over 6 months now and I've only had the odd day here and there where I've not bled. It's been very tiring and frustrating and after a few months of thinking about it I've decided to try going pill free again. I spoke to my doctor about it who said there wouldn't be any point in starting another POP because it would only act in the same way. She also mentioned that my milk would have changed when Hunter started on food at 6 months so this would also have an effect on my periods. Whether that's true or not, who knows. But she fully supported me stopping it (which surprised me!) and so I've now been pill free for one whole day. I'm not expecting great things - nothing miraculous happened last time - but I am hoping my hormones might level out slightly with not having any drugs messing them up. And it'd be nice if my skin cleared up a little because I know the pill can make that worse (or better!)... We'll see anyway!
It's not been a great week with the pain my period has caused and I've been super fatigued because of it all so I've been like a zombie again. Another bad week on the Amitriptyline rollercoaster.
You know, for so long I was relatively pain free and now I feel like I'm back to my old self again - just this time around I'm a mama and I have a few more grey hairs! It just feels like it's suddenly been piled back on me again. I thought pregnancy would give me a break from it all but it didn't. At least when I eventually go back to see the Prof. again (which I now know will happen at some point) I can throw his stupid suggestion of getting pregnant (though, not the so stupid amazing little gift we got out of it all!) to cure me back at him. But then, he'll probably just sit back in his chair, scratch his head and ask me what I want because he doesn't know what to do!
Sorry for the lack of positivity this week. I'm so tired of it all.
Friday, 20 May 2016
I was thankful that I had a good pain week for our holiday and apart from a few minor aches, I was able to get out and about every day without any issues. However, this week has been another story. Does anyone else who takes Amitriptyline feel like they are on a constant rollercoaster? I thought with taking a new medication I'd feel a bit off and then things would settle down, but since starting this I've had really good weeks where I've almost felt 'normal' (or, what I imagine 'normal' feels like!) and then I'll have a really bad week where I'm completely exhausted, in pain almost every day, my emotions are all over the place and I'll feel sick and groggy. Is this what should be happening? I know this medication is used for pain relief but as an anti-depressant I imagined I'd be feeling on top of the world with it and yet I'm finding it quite the opposite in reality. I'm starting to see a correlation between my sleep and pain though now. When Hunter has a bad night and I'm awake nursing him, my pain and general grogginess is much worse the next day. But, if I get to sleep early and Hunter just has his normal wake up's and settles easily then I feel quite good the next day. Same thing applies if I've been busy on one day, I'll feel worse that night and the next day so I'll have a day of rest and then I feel better again. I guess it all goes back to learning how to 'pace' but it's difficult when you have a very energetic toddler in tow!
I have to admit, I've found it quite hard to get my head around having fibromyalgia. I've lived with endometriosis for so long now - over 20 years of my life! - that I feel like I know it inside and out and I spent a lot of time blaming all my other issues on my endo. But, now I've been diagnosed with fibro also, I don't really know what is down to what anymore. I've chased this diagnosis for years and I could have jumped for joy when I finally received confirmation of it, but it settled in later on and I've been feeling a little lost ever since. Do any of you ladies have any tips for dealing with both endometriosis and fibromyalgia? How do you distinguish between the two? Does one effect the other? I just feel quite bewildered by it all so I'd love to hear from you if you have any wise words to share on the matter! It feels odd not really knowing anything about the illness you have and none of the doctors I've seen have really been able to tell me that much and definitely nothing in regards to my endometriosis also. All I really know is that, for now anyway, my borderline osteoporosis is not causing any problems so I can put the issues surrounding my periods and abdominal pains down to my endometriosis, and the pains everywhere else down to fibromyalgia and the fatigue is just a symptom of both illnesses. I'll just ignore the big blurry bit in between!
My acne is also really bad at the moment. I say really bad, but I was watching a programme the other night which featured a girl with acne and her's was terrible so when I say really bad, it's not really that bad. But it is bad to me, and painful and in general I'm just really fed up of being a spotty 30 something year old. I wish I'd made the most of having clearer skin while I was pregnant - though on the most part my skin was recovering from the bad acne and to be fair, I did have a lot of other things to focus on during this time! I think the next step is probably medication but I can't do anything until Hunter stops breastfeeding. Maybe it will magically clear up by then... There is always hope!
This week is Mental Health Awareness week 2016 and although I feel pretty stable with regards to my mind right now, I wanted to point you all in the direction of one of my old posts Self Destruction, where I spoke about my experiences with self harm and depression. You can also read through my other posts on mental health by clicking here. I've had a tough couple of years and had a lot thrown my way, but I feel at my strongest now. I have a loving and supportive partner, a lovely home and the most longed for little miracle I could have ever wished for and, although my health is still up and down and I don't have any clue as to what will happen with work/money, I really feel quite balanced - minus those days this blummin' Amitriptyline makes me want to cry all day! That's not me, that's the medication! What I really want to say, is that it's OK to feel down and sad, and everything else. But, if those feelings are tipping you over the edge and you feel like they are becoming just a little bit too much, then seek some help. Whether that be talking to a friend, someone you've never met online or a qualified doctor - it might not stop those feelings, but it will definitely make you feel a little less disconnected from the world.
Before I go, I just want to take a moment to re-introduce myself in case any of you are new to reading EMLWY. I have updated the About section and mentioned bits here and there but just to put it out there again... Hello! I'm Shireen! I'm in my early 30's and I live in a small village in the Midlands, UK, with my partner, Danny and our little boy, Hunter. I've been with Danny for 6 years now although we were friends for a few years before that. It took us two years and a very uncomfortable round of IVF treatment to conceive Hunter, but he's now a very happy and healthy 16 month old. I've had endometriosis since I was 12 but only started having obvious problems when I was 21, which, luckily, led to a very quick diagnosis. I've had 4 surgeries for it, tried various treatments and nothing has yet helped it and those treatments have only led to me being diagnosed with borderline osteoporosis as well as fibromyalgia. I haven't worked since 2012, when I had a flare up and was unable to return to my job - which I was later made redundant from. I started blogging because I needed some support and in turn found that a lot of you also needed the same thing. I've had a bit of a break and now I'm back and I've got some hopes for this small space of mine.
By the way, I'm wanting to write a few pieces but I need your help! I want to continue with the "My Story" series which showcased your personal experiences of living with endometriosis, so if you would like me to publish your story, or I've already posted your story and you'd like me to update it, then please email me! I also want to put together a post on endometriosis after pregnancy - specifically I want to hear from you if you've been diagnosed with and had problems only since giving birth. I follow a lot of mama's on Instagram who complain of terrible periods and pains post-birth and a lot of what they are experiencing sounds exactly like endometriosis to me. So I'd like to spread the word and write an article informing those who know nothing about endo, that what they are experiencing could indeed be endo and to get checked if anything they are feeling is abnormal to them. Please get in touch if you've been in this position. Likewise, if there is anything you want to read about, want to write a guest post, want to know about me, anything - get in touch! I want to take this space to the next level and make it not just about me, but about all of you too. You can find all my contact details in the Contact section at the top of the page or you can find me by clicking on one of the buttons on the left of the page under my mugshot! I really hope to hear from you soon!
Friday, 13 May 2016
I started writing this post over a year ago now - but thank goodness I did because else I wouldn't have been able to remember all the details about our IVF! This is going to be a long one, so grab yourself a cuppa and settle down for the tale of our Baby Blasto...
The last time I posted about our treatment way back in 2014, we were three weeks in, I was waiting for my next scan and everything else was going ahead as planned. We went in for the scan on Wednesday 2nd April (2014) and it was really positive news! I found out that I had 6 follicles that were perfect size wise (meaning, that they were in double digits, so anything over 10mm in size, each), 4 that were slightly behind (but may be OK in a few days) and a few small ones that wouldn't be used. Because of this, my egg retrieval was moved forward to the Friday and I took my last dose of Menopur that evening. I also had to take my refrigerated drugs at 9:30pm that night and then that was it for the injections.
While at the hospital, we also got asked if we wanted to take part in a trial which studies the role of endogenous cannabinoids (chemicals similar to cannabis but produced in the human body) in reproduction. We decided to go ahead and take part in the trial as not only would it help others going through IVF in the future, but also the doctors would be able to look a little more in depth at when would be the best time to transfer our embryos back in to my body. Plus, it only really involved a few extra blood tests!
On Friday 4th April we went in for the egg retrieval. I had a blood test for the trial first of all but then the rest of the morning flew by, and after I'd spent some time taking selfies in my hospital gown (to be fair this one was pretty fashionable as far as hospital gowns go!) and Danny had done his part *cough cough*, I was taken in to theatre and put under general anaesthetic while the doctors fished about inside me for some eggs! The recovery was easy afterwards and while having a delicious cup of hot tea, we were given the news that they had been able to retrieve 10 eggs. We were so happy. I was a little tender afterwards but that soon passed and the next morning we had the call we had been waiting for: 8 out of 10 eggs had fertilised and we had 8 chances left.
The embryologists kept in touch with us everyday and on the Sunday they called to say that all of our embryos had developed more but one or two were looking stronger and better than others and some weren't looking very good so they wouldn't be using those. At this point, I was on the borderline for the transfer and so the embryologist wanted to see what the doctor who was running the trial thought and so we went back to the hospital on the Monday for another blood test to see if we would be able to transfer that day or have to wait until day 5, the Wednesday. Unfortunately, after a very long wait, we found out that the blood machine had broken and so we couldn't complete the rest of the trial! It was a little frustrating but overall a good thing because that meant that the transfer would be on day 5 and by then our embryos would be classed as 'blastocysts' which are more developed and therefore much stronger, more resistant, and, most importantly, more likely to attach.
Over the next few days the embryologist kept in touch and let us know that our embryos were developing nicely, and we went back in on Wednesday 9th April for the transfer. Now, I'm not going to beat about the bush... It bloody hurt!! Before the transfer, we met the embryologist and she explained to us that the blastocyst they had chosen to transfer was the strongest and most developed and they were going to keep an eye on the other remaining embryos to see if they could be frozen. I was a nervous wreck and although Danny was in the theatre with me, I couldn't relax enough for them to complete the procedure and they had to fetch my counsellor out of an appointment so she could come in and calm me down with some breathing techniques! She was absolutely amazing and she held my hand and talked me all the way through it and eventually the doctors managed to pop our one little blastocyst in to my uterus where 'he' would be left to burrow on down in to over the next 9 days.
The day after the transfer, we were given some devastating news: none of our other embryos had made it to the freezing process. As the embryologists had been holding out for the blastocyst, the other embryos had suffered and they had blackened and died. We had gone from having 10 chances to everything being put on our little blastocyst surviving. It was a real blow and neither me nor Danny took the news well... Wow! It's tough reliving all this again. That was such a difficult day. We had to pull ourselves together though and concentrate on keeping our tiny little 'Baby Blasto' as safe as could be.
I didn't have to bed rest after the transfer but I had to be sensible about what I was doing - nothing strenuous so no shopping, hoovering, lifting or exercise etc. I did some very light housework on one day and definitely felt like I'd over done it so after that I spent most of my time just resting on the sofa.
9 days after the transfer, on Friday 18th April, we went back to the Fertility Centre for a pregnancy test. I had a blood test and they also did a 'normal' pregnancy test with a urine sample and after what felt like forever, we were called in to a little room where they gave us the news we had been waiting over 2 years for... I WAS PREGNANT! For the very first time in my life, I saw those two lines on a test. It was real! I squealed, burst in to tears and clutched at an emotional Danny. We couldn't believe it. All the tough times of the past few years, the emotional rollercoasters and physical challenges had paid off - it had worked!!
We still had another 7 days to wait after this though until we could really trust the tests. My HCG levels on that Friday were 129 and first thing on the following Friday, the 25th April, we went back to the hospital for another blood test. We finally got the results that afternoon and my HCG levels had risen to a whopping 2123! I was 100% pregnant and could put any thoughts of chemical and ectopic pregnancies right out of my head. We were having a baby!
I had to continue using my lovely Cyclogest progesterone pessaries until I was at least 12 weeks pregnant. These were absolutely the most disgusting part of the whole process! I had to insert one pessary in the morning and one at night and they were vile! But they obviously did the job and thickened the lining of my womb up lovely because, well, Baby Blasto is here!
During this time, my hormones started to run riot. A mixture of the IVF hormones wearing off, the challenge of trying to wean myself off all my antidepressants and painkillers, and a sudden influx of pregnancy hormones all mixed with general emotions left me a complete wreck! One minute I'd be on top of the world and the next I'd be struggling to stop the tears. I'd also started to feel the effects of pregnancy fatigue and the dreaded morning sickness.
On Tuesday 6th May, we went back to the Fertility Centre for our first 'real' baby scan. The nurse reminded us that things could still happen but, on that day, everything looked perfect. We found out that I was 6 weeks + 1 day pregnant and the most important thing, that our baby was alive and healthy! The picture is a little hard to make out, but the black shape is the gestational sack, then in the middle of that, the little white blob - the right side is the yolk sack and the little bit sticking up on the left is our baby! We saw 'his' tiny little heart beating away and it was incredible. We were discharged from the centre after the scan and I was put in to the care of a community midwife as well as a specialist IMPACT clinic at the hospital which deals with twin and high risk pregnancies.
The following weeks were really tough with the nausea and I lost around half a stone because I just couldn't face any food. After the scan, I also started to feel a lot of pain but as it coincided with me trying to come off my Tramadol (etc) there wasn't really anything I could do but wait and see - especially since I hadn't had any bleeding (which was obviously a good sign). The pain was so bad that it would have me doubled up and barely able to move and I got very stressed out and down about it. I was sure that we had lost Baby Blasto. It was an agonising wait. I spoke to my doctor regularly and she supported me fully every step of the way with the reduction in my medication and eventually I saw my midwife when I was 11 weeks pregnant - though she didn't really put me at ease because she didn't know anything about endometriosis!
My pains eventually started to get a little easier and we finally had our follow up scan at 14 weeks. I was terrified that something would be wrong, that Baby Blasto would have disappeared. But there 'he' was, fast asleep on the screen, with 'his' little heart pumping away like crazy. No one will ever know the relief I felt.
Blasto started moving at 15 weeks - only a few days after the scan. It really was magical to feel those tiny little 'popcorn' movements and I felt so much better about everything because every movement only confirmed that our baby was healthy and happy. I attended the IMPACT clinic every few months and found out that I would have to be induced if Blasto hadn't arrived by our due date.
Everything seemed to be going smoothly, but at 19 weeks I started getting Braxton Hicks. They were really painful and made me feel completely exhausted with the constant tightening's.
On 12th August we had our 20 week scan and we found out that Baby Blasto was a beautiful and very lively boy! Though the sonographer actually told us before we asked so it was a good job we wanted to know! The coming weeks were much easier. I didn't have much of a bump and I spent most of my time comparing it to other mamas-to-be bumps but I knew he was OK so deep down that's all that really mattered.
At 29 weeks we went for a HD Live Scan and saw our perfect little fella (yes, we did double check he was a he!) moving around. It was absolutely incredible. We were given scan photos and a DVD of the entire scan and we watched it almost nightly until his arrival!
Unfortunately, I woke up early the next morning not feeling right. I couldn't really put my finger on what was wrong but I was in a lot of pain. I tried a warm bath, paracetamol, rest, moving around but nothing was easing it and in the early hours of the next morning Danny took me to the hospital. I was monitored for hours, scanned and swabbed and we were then told I had tested positive for pre-term labour. It was an odd moment really because we were both exhausted and it didn't really sink in until they told us that I had to stay in because our baby might arrive at any moment! They didn't have any beds available with the neonatal care the baby would need so I was transferred to Sheffield, 67 miles away. I was taken by ambulance with a midwife in case Blasto arrived mid-journey and I was incredibly anxious by the time we arrived. I had steroid injections to make Blasto's lungs strong, should he arrive, and was hooked up to various drips and monitors. I hadn't dilated at all so I was told it could be a false-positive and our baby was fine - even if I was in a lot of pain.
That night, with Danny sleeping on a mattress on the floor, I finished the drip that would try and hold labour at bay and I was moved to a private room (a perk of living so far away!) on an antenatal ward while we waited to see if anything happened.
I stayed here for the next week, hooked up to drips and having all manner of examinations, tests, injections and scans. A research study we took part in showed that my fibronectin levels were negative - to test positive for pre-term labour these levels needed to be above 50 but mine were only at 3! This along with my uterus showing no sign of opening was great news. They kept me in for further monitoring because I was still in pain and I felt like I'd really achieved something when I reached 30 weeks. Though this quickly turned to disappointment when I found out the pains and general icky feelings I was having were contractions and I hadn't even realised. I was put back under threatened pre-term labour again and monitored closely but I wasn't dilating and Blasto seemed happy where he was. This was the first time my endometriosis was mentioned as being the cause of my problems. I spoke to a midwife who had gone through something similar and she told me all about how endometriosis can 'irritate' the womb and cause such issues. Though, to be honest, no one seemed to know what the heck was going on!
I needed to have a 24 hour period with no contractions before they would allow me to go home - however, they were coming in strong at 5 minute intervals and were starting to exhaust our little one. He was so sleepy that I had to have extra monitoring. A week later, still contracting and none the wiser as to why this was happening, I was allowed home. Probably only because I nagged at them so much to let me go though. I was told to take Co-codamol and to go straight back to hospital if anything else happened. I was over the moon to get back home.
Unfortunately, the next morning, the contractions took a turn for the worse. My mum rushed over to be with me because I went straight in to panic mode. I tried to relax and took extra tablets at the doctors recommendations but the pain continued to increase and by early afternoon, I was screaming the house down. Mum called for an ambulance and I had to check if I could feel Blasto's head (which I couldn't). Danny was called home from work and arrived just as the paramedics came to take me back to hospital. The pain by this point was unbearable.
I spent the rest of the day being monitored and scanned. At one point they thought my waters had broken - they hadn't, but I did start bleeding. I was taken to a ward, high on Entinox and painkillers, only to wake the next day feeling fine. I was incredibly frustrated. They decided to keep me in as I was still bleeding. A few days later, though I was still having tightenings, everything else settled and I persuaded them to let me go home. After two weeks in hospital, all I wanted was the comfort of my home and Danny. The doctors couldn't find any reasons for the pain and tightenings and it was blamed on my uterus being irritable due to my endometriosis.
3 days after being allowed out, I was back at hospital but this time it was for our final IMPACT clinic. I spoke to them about what had been happening but they didn't offer any further clarification on the situation. We were booked in for our induction on 23rd December and kept on the books in case of any problems.
Over the next 7 weeks, I was in and out of hospital due to the pains. I was given some stronger painkillers to take alongside Paracetamol and these helped a lot but didn't stop the tightening's. By 35 weeks, Blasto was 4/5 engaged and by 36 weeks I was starting to lose my mucus plug. 37 weeks came and went - Blasto was full term and not budging, and at 39 weeks, I went in to hospital to be induced.
The day of the induction is a bit of a blur. I arrived at the induction suite by 9am and at midday they confirmed I was only a fingertip dilated. A pessary was inserted and I was taken down to the antenatal ward. The pessary started working straightaway and by 5pm the contractions were constant but irregular. I had a bath which didn't help at all and by 7pm the contractions were 2-3 minutes apart. The midwives couldn't do anything until I was 5cm dilated and they wouldn't examine me so I was stuck on paracetamol, panicking through every contraction with visiting time on the ward and Danny getting angry at me because I wasn't listening to him telling me how to breath.
Eventually at 9pm they moved me to a side room, I had my TENs machine on and the midwives sat with me. I was already pushing and couldn't stop myself. Finally at 10pm they examined me and found I was 5cm dilated. I was moved to the delivery suite straight away and within minutes a loud pop echoed around the room and my waters broke - everywhere! It was like sitting in a swimming pool! My waters were black with menconium and they became concerned for Blasto. I was completely spaced out by this point and just remember the pain. I couldn't focus beyond it. Entinox wasn't working and with all the pushing I ended up tearing my cervix and was bleeding heavily. I was 7cm, labouring too quickly and I later found out that Blasto's heartbeat had dropped dangerously low and wasn't registering on the monitor.
The anaesthetist finally arrived and administered an epidural, but within minutes it was taken out again and I was rushed in to theatre. They didn't have time to put me in a gown and all I really remember is asking repeatedly where Danny was as he had to get changed and was waiting to be allowed in to theatre. In the meantime I had tubes inserted and injections of all sorts and was strapped down to the table. The spinal block started working and a flood of cool water washed over me. Staring up at the theatre lights, I was in heaven. I had no pain. Danny came in and they cut me open. I felt a lot of pressure then heard the most wonderful, yet angry, cry.
Hunter Ace Willoughby was born at 00:46 on Christmas Eve with his cord wrapped around his neck. He was rushed straight off to be checked and have his throat cleared of the menconium. And then I met him. All 7lb 1oz of him. Danny held him near me but I was still strapped down and unable to touch him. Danny took him in to recovery while I was stitched up and then I was wheeled away too. I finally held him and I couldn't believe how perfect he was. It didn't feel real.
Friday, 6 May 2016
Hello folks! Remember me!? Yup, I'm back! It's been over 2 years since my last post and I've finally found some time and energy to get back to my beloved blog. I've had many moments over the last few years where I was determined to give up on EMLWY. I almost didn't want to share my life with anyone besides those closest to me. I received lots of messages in my time away off ladies needing to know they weren't alone and having had some set backs in my own health I eventually found that I once again needed the support of you lovely lot too. So I've spent some time updating the blog and getting my head around this whole technical malarkey once again and now I'm back with not only one post for you, but other posts in the pipeline! Go hard or go home, right!?
I probably left you all at the worst possible time, halfway through our round of IVF! A pivotal moment not only in my life but also for the blog! So, I guess the BIG thing to mention first and foremost is that I am indeed a mama! If you follow me on Instagram you'll have seen my hundreds of photos of the little man already, but for those of you who don't, I guess I should introduce our dude...
Hunter Ace burst in to the world on Christmas Eve 2014 and he is now a walking, talking/shouting 16 month old toddler! Our lives have changed so much since we became parents and this one has brought so much love and laughter to our home. I'll update you all on the rest of our IVF treatment and my pregnancy in a separate post because there is A LOT to cover! Let's just say, it didn't go quite as smoothly as I imagined it would!
After having Hunter, I decided I wanted to breastfeed. In most cases, breastfeeding means your periods shouldn't return for a good while. For some, it's years before they menstruate again. Me? 4 months. That's all I got! They started light and reasonably regular and I hoped that the pregnancy had somehow re-set everything for me. Yeah, how I was wrong! I'm still now on a period that started in November last year. Apart from the odd day here and there, I've been bleeding for over 6 months. I'm exhausted with it. On top of that, a few months after having Hunter, I started having problems with my knees. I'd be so stiff I could hardly walk down the stairs and this only developed over time. I eventually went to see a doctor who ran a long list of tests and when they all came back clear she determined I had fibromyalgia. By this point, I was having problems with not just my knees, but my entire body, and the fatigue was unreal. I was referred on to a Rheumatologist, one I'd been under the care of before, and 2 weeks ago I finally received confirmation that I do indeed have fibromyalgia, along with a new diagnosis of borderline osteoporosis (as opposed to osteopenia) and finally, a reason for my hip problems - trochanteric bursitis - for which I'll be having a steroid injection for in a few months time. I've started on some medication for the fibromyalgia and so far the 10mg dosage of Amitriptyline I take every night has greatly improved the pain. Though it's absolutely knocked me for six!! I can take up to 30mg at the moment but the 10mg dosage has left me feeling like a dry mouthed tearful zombie for the last few weeks and I've been finding it a real rollercoaster. Some days I feel fine, whereas others I'm a total spacehead, feeling so sick and poorly I have to go to bed early, only hoping it passes.
Anyway, that's a brief overview of what's been happening. I really hope you are all well. I have lots to write about and a lot of emails to reply to so keep your eyes peeled folks! I'm so looking forward to getting back in to this!